How To Properly Prepare When You Or A Loved One Has Type 1 Diabetes

The advice below is from a Mother who has a Type One Diabetic child. She emphasizes that there was much research that went into her findings and while she is not a medical expert she is a long time prepper and pretty much knows what she is talking about.

Getting Started: Short-term Emergency Preparedness
The Juvenile Diabetes Research Foundation in 2013 advised diabetics to keep a filled medical bag after Superstorm Sandy hit in October 2012. Doctors were concerned that, gasp!, some of their diabetic patients weren’t prepared to go a couple of weeks without visiting a regular pharmacy! One woman didn’t have a regular pharmacy for 5 months following Sandy.

Put together a supply bag.
A bag that holds basic supplies for the diabetic is a smart first-step. The JDRF checklist might be helpful in packing that first bag. After some experimentation, I keep a tiny first aid box filled with pen needles in our everyday carry bag. And while you’re in the travel aisle, grab a tiny pill holder with a screw-on lid for sharps disposal. Mine can hold 3 used pen needles, enough to dose for each meal without worrying where to put used needles.

Carry snacks for emergencies.
We keep a high-sugar snack for emergencies, as well as no-carb snacks that can curb hunger in the everyday carry bag. A case of water bottles in the trunk makes sense, too, as diabetics need to drink continuously. We keep even more snacks in a lunch bag in the car, along with 5 more days’ of supplies in case we wind up stranded somewhere.

Stocking up on Insulin and supplies.
The problem with stocking up on diabetic supplies is that they are expensive and insurance companies make it difficult to buy more than is needed for a short period of time. As with most prescriptions, many insurance companies will only pay for 1-3 months of refills at a time, and will only allow refills once supplies dwindle to a few days’ worth of reserves. That’s cutting it way too close for this prepared mama. If you’re new to diabetes or to prepping and have been worried about this, take heart. I’ve done some of the legwork for you.
If you are getting prescriptions one month at a time at a local pharmacy, you may be able to get a few extra days of supplies every month by going on the first day you can get a refill. That will leave you with  about six days of supplies at home. Over time, that can add up. However, many insurance companies are now requiring patients with “chronic conditions” to order their supplies through the mail after the first three months. Mail ordered supplies are sent automatically and make it virtually impossible to stock up in this way.

Another way to add to your stash of insulin may work if your loved one uses a pump but is very active. With a doctor’s approval, they might consider switching to a pen for at least part of the year. Some high school wrestlers with T1D are on a pump most of the year but switch to insulin injection pens during wrestling season for safety. Because there’s some overlap in refills, they will end up with a few extra pens tucked away as backup. Switching to pens for the summer might make sense if your self-conscious preteen is swimming, boating, canoeing, and cruising the pool. It might even be necessary if their pump can’t be immersed and they will be around water for longer than they can go without it.

How much insulin should you store?From my experience with food storage, I recommend you use the same guidelines as you would for food. If your canned tomatoes keep for a year, store a year’s worth and rotate. Refrigerated insulin will keep for up to two years, or 30 days once opened and kept at room temperature.
While it is prudent to follow the “store what you use and use what you store” philosophy, pump users might want to skip down to the “Grid-down” section before putting all their insulin “eggs” in the “pump supplies” basket. Either way, request that all your prescription supplies automatically refill as soon as your insurance company will allow. If you can choose a couple of days a week to reduce carb intake and thus reduce insulin use, autofill can eventually get you a little bit of cushion.

Stocking up on Testing Supplies.
It is simple to buy diabetes test strips, pen needles, etc. from Canada at a fraction of the cost. Price check all your options to get the lowest combined price, and be sure to take shipping into consideration. Remember to check eBay and Amazon as well. We found both to be only slightly less expensive than the pharmacy, but you can luck into great deals on eBay.

Diabetic specialty websites like Glucomart carry hit-or-miss supplies and run daily updates. You have to check back pretty often, or use your email address to request notification when the products you need are in stock.
Testing on-the-go is much easier with alcohol swabs. I pick up a 2-pack (400 total) for less than $4 every time I go to the store. Even in bulk, I can’t find them cheaper than at Walmart. At home, we use a giant bottle of alcohol and cotton balls, available at dollar stores everywhere.

While I personally haven’t tried it, you may also be able to find unopened testing supplies at an estate sale, just as you might find other non-prescription medical supplies such bed pans, surgical gloves, or dressings. In estate sales, you might even find a new or lightly-used testing machine to go along with the supplies.

With second-hand supplies in particular (estate sales and eBay), be certain to check the expiration date, and (obviously) that they are compatible with your machine. They may be cheap because they are close to their expiration date. Use those right away and save the ones with later expiration dates.

I’ve created a spreadsheet to help me keep track of our supplies, their expiration dates, and how much of each I need to stock up on in order to be prepared for 3 months, 6 months, and one year.

Immune support is crucial for T1D patients. In fact, contracting a common cold or flu virus is often what pushes an overactive immune system into overdrive and coincides with T1D onset. Endocrine changes due to illness wreak havoc on blood glucose levels. Avoid sickness and support immunity whenever possible.

Vitamin D is also shown to assist with glucose control. It’s equally important for our other children to get vitamin D, as a deficiency is linked to increased risk of developing the disease for those with family history.

Low-carb alternatives. In an emergency, you may want to reduce carbohydrate intake to make insulin stockpiles last longer. Our medical team says kids need a MINIMUM of 130 carbs per day for growth and development. Basing insulin stockpiles on current needs should give you some wiggle room.

Other useful items for a Type One diabetic include brown rice, Splenda and/or Stevia and powdered milk with 8 carbs per cup (much better for a Type 1 than the 12 carbs in 2% milk).

To learn more about Type one Diabetes during a crisis please go to The Survival Mom. There, the article discusses rationing diabetic supplies, many off-grid considerations, and further stock-piling.


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